My name is Debbie and I am the founder of Epilepsy Parents and we are an epilepsy support group, the group was started on the 4^th January 2011.
We are based in the UK and we provide support for children with epilepsy, parents with epilepsy and also families that live with the condition every day. Caring for someone with epilepsy can be a very lonely place especially for a parent of a child that has been newly diagnosed. Childhood epilepsy can be a very complex condition. It is our aim to raise the awareness of childhood epilepsy.

We have an 11 year old daughter with epilepsy and throughout our daughter’s condition and diagnosis we have found a distinct lack of support for children and young families who live with epilepsy. So we decided to start a group for ourselves and discuss epilepsy with other people that are in a similar situation to ourselves.

Epilepsy Parents support group has a Facebook page and this page gives parents an opportunity to discuss and to share their experiences of children’s epilepsy and the daily challenges they may face. Also on our Facebook page we have many parents with epilepsy themselves and they share their experiences with the condition. You can now also follow us on twitter

The demand for a support group like Epilepsy Parents that is for children with epilepsy and their families has been overwhelming and this is why we are working towards gaining charity status. We are fundraising and holding awareness events all the way through the year so please take a look at our “News & Events” page.

Epilepsy Parents is eager to tackle the education system. Epilepsy Parents wants to raise the awareness of children’s epilepsy in schools and introduce educational material for teachers, pupils, peer groups and siblings and all material would be produced by parents! Also we would like to introduce training into schools about epilepsy and the over 40 different types of seizures that a child may have.

Thanks for looking at our page and please contact me if i can be of help in anyway

Deb

Call or text us on 07919 978872 or email epilepsyparents@gmail.com for more information.